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Readers Respond: Common Causes of Eosinophilic Esophagitis

Responses: 35


Updated February 01, 2010

I thought I was alone with this

I am 32 I have been regurgitating and choking on food since I was 7. I can only describe the feeling like the food is going nowhere and is leaning on my wind pipe. I have learnt to deal with this myself as no medication helped and until my diagnosis, when I was 29, I was also made to feel like it was my fault. The only advice I can give anyone is try and stay calm. If I start to choke and people around me panic it makes me worse. I know its easier said than done but if I just take a min and wait I can almost feel my throat easing off. This doesn't always work and the food comes back up. I also have to stay vertical after eating or food/acid will trickle back up, I also can't bend over, I describe it like being a bottle with the lid not on right The only advice I can give any parents is be patient, stay calm (not always easy) and give your child little meals and often. Also stay away from acidy foods especially orange juice, doughy bread also causes problems and gets stuck. Good luck
—Guest fclark

31 yrs old

early on i had mild asthma(that i outgrew)woke up with croup ocasionally, then 7-yrs i had heartburn, couldnt drink milk, if i ate ice cream i woud pay for it all night(regurgitate clear fluid with intense pain in my chest) as an adult the heartburn went away but i still had problems with many foods. at 29yrs old food started to get stuck and i would make myself vomit out of discomfort. so i had an endoscopy and was diagnosed with EE. allergy tests showed i was allergic to nuts, milk,eggs,wheat,soy,corn, pork, malt,grains. ive had 3 allergy test so far and although the main ones are always the same sometimes the minor reactions are different. i avoid food triggers as best i can, i take omeprazole, 2 puffs of flovent, and I am getting better. Its funny but if i eat one bite of something i shouldn't, i burp up air immediately. i can't eat before bed or lay down for a while after meals. has anyone researched or tried hookworms as a treatment? i would love to be able to eat normally again
—Guest greg nj

EE caused by milk allergy

I've had trouble off and on with swallowing for several years and three food impactions requiring surgical removal. The GI doctor performed another EGD w/biopsy after the last episode and determined that I had EE. I went to an allergist who determined that I have a milk allergy. I did without milk and foods containing milk for six months and was re-scoped. The EE is gone! I've had no problems for over five months now. Many thanks to my persistent doctors! Milk is in so many foods so read the labels carefully!
—Guest My Solution

EE experience

I am 28 years old and found out that I have EE about 2 years ago. After having extreme choking of food incidents for the past 10 yrs I was forced by my girlfriend to go to drs. After being referred to a gi specialist and going to endoscopy, it was found that my oesphagus was almost totally closed due to scar tissue left from the histamine effect. I was referred to an allergy specialist who specializes in EE and was tested. Primarily to reactions to egg, chicken, and soy products. I was also highly allergic to dust mites and numerous grasses, and the fact that I have chronic asthma and eczema didn't help the case. I have currently been on immuno therapy for the dust mites and grasses for the past year, and my immune system is fighting vigorously. Though specialist believes my immune system may be lazy and needs to adjust. Another trigger for reactions that has major effects is the sulphites in red wine.
—Guest EE I miss you KFC

Boy this sucks.. I hate EE!!!!!!

I was have had EE for some time now. Ignoring the fact that I need meds for this because of no health in. So I live with this when one day the most dreadful thing happend. I got the tiniest piece of steak stuck and had to have it removed.. It happned twice in a month. I had five surgeries on my Esophagus in three months. I now am puffing floevent 2 puffs twice a day. It is helping a lot. I am getting allergy tested soon to find out what triggers it the reaction. I am praying for all of you.. We will make it trough this. :o)
—Guest Naygirley

EE - 2 yo

After about 8 months of doctor visits- my son's been diagnosed with EE. His only real sysmptom has been vomiting, which caused weight loss. No pain, No ezcema, nothing. He got him on prevacid, and its stopped (at least for now)...Anybody else seen EE like this? Should we expect it to goet worse as he ages?

Need Advise...

my 2 year old daughter got diagnosed with EE a year and a half ago. it has been a struggle evey since then. she has multiple food allergies including:dairy, soy, barley, wheat, sweet potatoes, potatoes, all vegatable except corn and all meats except ham. she is on 4 different kinds of medicine for EE, acid reflux, and her food allergies. she has constant weight loss and for the past two months she has been really sick. any advise???
—Guest britt23

Life Without Food

Hey. I'm 18, and I was diagnosed 3 years ago with EE. But I've had the symptoms of EE, since as far back as I can remember, i was 6 years old. I went to my family doctor when I was bout 7 or 8, and they said there was nothing wrong with my esophagus, and I was just not chewing up my food. But after many years of food getting stuck, and extrememly painful esophageal spasms, and after one of my teachers told me her husband goes through the same thing, and that I should go get checked out, I finally went back to the doctor to find out what was wrong with me. I went through x-rays, barium swallows, consultations, and then finally an endoscopy/biopsy. They found that my throat was severely inflamed, and so they sent me to an allergist, to get allergy test done. Turns out Im allergic to 11 foods, maybe more, because even now I still have symptoms (even to smells of foods/grass ect..) Im allergic to Corn, Beef, Fish, Eggs, Shellfish, Chicken, potatoes, greenbeans, pintobeans, turkey and pork.
—Guest AngelNichole

EE Sucks

I am unable to eat solid food without the annoying feeling of choking. I had an endoscopy and I have ee. I have to swallow 2 puffs of flovent twice a day and I'm on a steroid called Carafate that I have to take 4 times a day and it tastes absolutely terrible, it feels like chalk and is suppose to coat my esophagus and stop the inflammation. It works pretty well but if i don't take it for a day, my throat goes all puffy again.
—Guest Turtle

How I found out I have "EE"

Everything I do after eating seems to lead to an "episode". Exerting myself, laughing, coughing, etc. I had extremely frequent heart burn that wouldn't go away with over the counter meds. I would regurgitate most meals and often find myself scared that I would choke to death during the attacks. After seeing a specialist, I had an endoscopy and it was biopsied. I tested positive for EE. I now swallow 2 "puffs" of flovent each day, along with taking singulair and protonix each day. I still have attacks if I eat too late, or especially if I don't sit and relax after eating a meal. I especially have to be mindful of eating a meal slowly. My physician said I would likely ALWAYS have to be on these meds for relief. He's had very few patients that are able to stop with meds, and have symptoms disappear. I'm happy to have some relief though!
—Guest Amusing01

how i found out i had EE

I am 21 years old & i was diagnosed with EE 3 days ago. For awhile now i have had episodes of choking with food stuck in my throat and eventually having to throw it up.. I would just want to cry when it happened it public, especially when i had to make myself throw up in the bathroom. Other than the choking, i was having bad heartburn, nausea, and abdominal pain.. I thought it was just me and I was just different. I went to see an allergist for seafood allergies and it came back positive. So he wanted me to see a GI to get scoped to check for EE. It came back positive. I was really upset, but thankful to know i wasnt crazy and that my symptoms were all related. Other than seafood, i have horrible outdoor allergies. If you think you might have EE i urge you to get it checked out. I could not be more thankful that i did!!
—Guest Alyssa

eosinophilic (EE) related to ulcer?

I am 44 and was recently diagnosed with EE a week ago. Have had mild heartburn for the last 3 months and one freaky throat spasm choaking episode that lasted 20 seconds while eating Thanksgiving dinner. Found I had EE through a follow up endoscopy for an H-pilori ulcer. Got rid of ulcer and the H-pilori that caused it. Anyone had the same experience?
—Guest Tilla

EE and airborne allergies

I am 56 years old. After years of choking episodes, omeprazole (for GERD) seems to be helping. I got allergy tested yesterday and no fods showed up positive, but dust mites and cat dander did. I have a dusty house and 2 cats. I have no symptoms usually seen in people with cat allergies- never sneeze, never get watery red eyes. I do have mild asthma, exercise-induced squeaky wheeze that started a few years ago too. Dopes anyone else have this profile? I will not get rid of cats, not happening. But is it worth spending tons of money on air purifiers, dehumidfiers, dust-mite covers, etc?

collins mom

my son was just diagnosed, with ee. he is 20 years old and has had several scary choking episodes (food lodged in his throat). The GI doc who scoped him - told us he has had it for many years, and it was an allergic reaction to something??? be it food or environment...interestingly, he was always a very slow eater, had no appitite, never gained wieght, and was a slow grower (late bloomer). So what do we do now? if its food allergies, it will be hard for a college student to manage... Dr feels allergy testing is a waste of time.. for now he has to be careful eating, and swallowing..we will just keep an eye on him..
—Guest collins mom

EE, w/trouble finding allergens

I was diagnosed with EE after an upper GI with a biopsy. I kept feeling food get painfully "stuck" in my esophagus 2-3 times a week. Excess mucous production occured during each episode, and often my body had so much mucous produced in my stomach/esophagus that I had to regurgitate and then it was mainly mucous that came up. One night I couldn't even get water down for 12 hrs! Scary. So my allergy test comes back with absolutely no food allergies, but lots in terms of grasses and trees. But I don't have a runny nose, sneeze, or have hayfever symptoms -- I don't appear to be allergic to anything environmental. Does anyone else have EE with no answer as to what is causing it? I am now on Flovent (inhaler, so I swallow the puff) twice a day -- it is helping 50% or so after a week, but I've read once you go off of it, most symptoms recur, and you don't want to stay on the medication for long periods of time. Any suggestions?
—Guest turbo

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Common Causes of Eosinophilic Esophagitis

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